Monday, March 22, 2010

Just another manic monday... whooa woeee

Have you ever noticed that the closer you get to home... the more you have to pee? Just a little Monday morning visual... No time to waste, and starting out the week BIG. I emerged from the bathroom... Tissue in nose, puke bucket in hand, woobie wrapped around me tight, and dragging one foot and then the other behind me to scratch the bottoms of them... I made my way to the couch because Larry gets uncomfortable in the bed, plopped myself down, jumped up to remove the Hot Wheels first, laid back down and realized I'm not very sleepy anymore. hehehehe.... I'm ok really, not complaining. I think it really is just the anticipation... knowing that I may not be sick sometime VERY soon!! It's almost unreal. Although it hurts my heart so bad to think of all the sick people I am leaving behind. Still waiting... still dying...  This needs to change! We have to fix this guys! Ok, I'm getting emotional at 5 am... and lookin' pretty pathetic. Be happy I don't take a picture this morning. I looked like the hunchback of Notre Dame coming in. hehehe.
Have a good week everyone, and remember... you can either laugh or cry, and crying will only give you a headache.waka waka! :o)

Saturday, March 20, 2010

Tuesdays doctor appointment

Jason told me today that cars do not really explode like they do in movies if you shoot the gas tank. (while I am very glad that this one is in fact "Hollywood" fiction, I am always slightly disappointed when movie magic is ruined for me) However, this got me thinking of other things that movies and T.V. exaggerate. Many episodes of House have shown blood spewing from cirrhotic patients mouths and noses with bleeding varices, but is that the way it really happens? I may be slightly desensitizing and diluting myself by saying. "Ah, I saw that on T.V. and theirs was A LOT worse before they went into see a doctor...I've got time, what do you wanna eat tonight?" hehe. For all I know we don't even have the amount of blood they lose on T.V. in our bodies... Needless to say it made me concerned enough to finally get up and call my doctor to get my nose done. (cauterized, that is)

I will also be going in on Tuesday to schedule my cardiologist appointment. I have been noticing some chest pain and chest flutters these last few weeks and although I am assuming that it is some hidden anxiety, I better check out the ol' ticker just to make sure... It is past my yearly check-up anyway. (I got a leaky valve... or as I like to say, Thumper is a regurgitator.) hehe.

One of these issues might be the cause of the (extra) dizziness, lightheaded, tiredness I have been feeling... but I have no expectations to fix that... I just know that my appetite will come back if I stop bleeding all over my food, and that's a good thing! hehehe.

Wednesday, March 17, 2010

Join Team Larry Now!!! Less then 45 days left!!

 
I must admit I am becoming very worried about my first attempt at fund raising for Team Larry. I know I have a lot of people who have said they will be there... but I have only one member so far -- FAIL. Well... Maybe someone will feel sorry for me and join my team (This is one of the reasons I have always hated organized sports and competitions). Next year though... watch out. I'll be going door to door.
Please... if you can, sign up. Help us out... I can't have a banner if there is only 5 of us, that will just look ridiculous... hehehe

Tuesday, March 16, 2010

You wanna give her whaaaat???

Meet Nancy. Nancy is a wife and mother like me... She is also my husbands cousin (just one more reason I'm glad I married him... hehe I joke) And incase you didn't know, Nancy had her first USC appointment yesterday to be the person to save my life. Whatever happens now is in God's hands, and we have agreed that if at any point it just doesn't feel right, we will throw in the towel. We will know... God will close the door if it is not meant to be. And I believe that with all of my heart.
But as I sit here in the dark again this morning, tissue tickling my nose and "puke bucket" at hand I can't help but to be excited. This can all change very soon... and I am ready for the change. Now, I guess this would be as good a time as any to also share, I am not going into this blissfully ignorant. I do know that this transplant does not make everything all better. First off, any surgery has risks. Secondly, I will be on anti-rejection medications for the rest of my life... any fever is cause for alarm because at any time my body could reject my new organ (but I keep everything... so no worries there) And ofcourse, there is the reason my liver has failed in the first place -- A transplant will not cure my Hepatitis C.  (I think Nancy took it a little personally when I told her that it will most likely begin to attack my new liver too) but it will give me precious time, and hopefully less sick time in this world with my friends and family. Plus, I'm holding out for a cure.                                                                               Tim & the Boss waitin'

Yes, this is only the beginning of our fight, but life is worth it, and Nancy... knowing that it is (literally) impossible for me to do on my own, decided to BE my miracle. She saw something that she didn't like, and decided to try and change it... Now I don't know about you, but this is something I aspire to! And that is why she is my hero now and forever -- Well... that and the obvious (liver sliver giver) reason. Yes, this is one amazing family right here, and trust me when I say that this gift will not be given in vain... I know that I may be one of the lucky ones; the fact that 18 people die and thousands more suffer daily waiting for this gift, never leaves my mind. And if by the grace of God I am given the gift of a second chance, I WILL BE part of this change.