Do over, please.

Good morning!! I hope you all had a greaaaaaaaaaat Easter!! Mine, on the other hand was filled with puke and sleep... and THIS time, it wasn't only me doing the puking. River wasn't feeling well yesterday either. He woke up not his chipper (bouncing off the walls) self, and lost his breakfast soon after eating it. Poor daddy probably hears the wretched noises in his sleep... Yes, both me and River were throwing up; and Easter Sunday this year, was not happening.
River being sick has all kinds of secret meaning to me... my mind starts running as soon as he catches any kind of stomach bug... "Oh no, is he going to be just like his momma?"  Of course, the fact that he has never been on antibiotics in his lil' life (so far) usually calms me down. I don't know what caused my liver to begin failing, but maybe I can keep River's from doing the same... at least until they find a cure "momma approved".  For now, River takes his multi-vitamin and an extra dose of Vitamin C (Vitamin C has been linked to expelling the HCV virus from children) and he eats a pretty well balanced, low sodium diet. That, with no damage from antibiotics and over-the-counter drugs should at least prolong the onset of symptoms (I pray) for him in the future. My poor baby. I don't know how moms do it with hurting children... I just sat there and watched him (now I know how Jason feels with me) so helpless... waiting to see if he needed anything. Once he wakes up this morning back to himself, I will sigh and do a nervous laugh..."See...he-he-he... everything's fine, River is OK." Then I'll have aunty Rylee and Ahma come over and do a little Easter egg hunt with us this afternoon. :)

On a totally different subject. Jason found out Friday that starting next week, his company is going completely virtual. (Which is another way of saying, they can't afford the lease on their floor in the CNN building anymore, so Jason will be working from home.) They have also cut their animators pay to 70% again until they pick up. So pray for them... and us, because without their medical insurance I cannot have a living donor... and I don't even want to think about what that would mean. But Jason has assured me that it won't come to that... Rezn8 has been in business for over 20 years, and as we know,  they have been slow before...  They are a great group, uber talented, and have been so supportive... But a little prayer won't hurt, times are definitely rough out there.

APRIL IS DONATE LIFE MONTH!!!

I shall cut myself some slack this year and consider my computer postings and doing the walk on May 1st as enough "extra" awareness... but starting next year, it is on.
..Of course, if you would like to go door to door for me, I would be much obliged. I'm feeling mighty emotional right now, and I wish I could do so much more... everyday I read stories and talk to others like me...(or even tougher, I talk to their caregivers) I have gotten to know people waiting, people who have had their miracle, and sadly, I have known some that have lost the battle. My heart soars when I hear stories like Rachy's who finally got her lungs, breaks when time runs out for those like Eva and Ken, and has nothing but faith that precious Gabriella, Jenn, and I will get our miracles and be terrorizing the town in no time. hehe

So get out there and spread the word for us! We are nearing 107,000 mothers, fathers, sons, daughters, brothers, sisters... you get the point. Each one of us has a story, an actual life, and 17 of us are dying each and every day. We can change this... we have to change this!

And make sure if you are anywhere in the Orange county vicinity on May 1st, you get your butt over to Cal State Fullerton and join Team Larry for the family festival!!

Oh and totally unrelated, but worthy of mention in my opinion... This is my 100th post. Wow huh? what a whiner I am. Hey... any kind of publicity for organ donation has got to be good publicity, right? (I have no shame)  hehehe.

Larry's Last Horrah!

Almost 30 years down, and I am still clinging to hope that it can't rain all the time... and it looks like this storm may be passing soon!! Friday night Nancy got the call from Janelle at USC, and she is officially liver splitting capable (hehe... oh ya, I've got more clever sayings so stay tuned) So we will be setting up the surgery. And if all goes as planned, I will be taking River to preschool myself by September. (that's even giving myself a 6 weeks recoup time...hehe) I really am trying my hardest to prepare for the worst and praying for the best. :) Which was sort of the reason I wanted to take this trip to Las Vegas in the first place. It really is uncertain how this will all turn out. I am trading one set of problems for another if I make it at all, and what if it doesn't take all of my old problems away? Even though, right now I am pretty much in constant pain and on borrowed time... it is familiar and all I have, so I will try and make the best out of it. So, I thought I should send Larry out in style... but, it kind of turned out to be a reminder of everything we can't do... (and I'm not talking boozing it up and prostitution here people) At least when I am in the hospital, I know that there is nothing going on around me that I am missing... But in Vegas... Man, that's torture!! Hehehe... No, no, it wasn't bad, I joke. I got to do just about everything I wanted to do... Saw a comedy show, window shopped, went swimming (well, floating), and reminisced with the guys. I haven't spent as much time with them as I would like, so that was a treat. It just all had to be done between naps and from a wheelchair this time... hehehe. (By the way, I did feel really bad using the wheelchair, especially when they would roll me up next to someone who actually had their own, but it really did keep Larry from hurting and me from extra naps on Sunday - I didn't love it - I was even shorter then.
But it was nice, and now it is all down to business. Pray for the best and prepare for the worst... Me and Nancy have some paperwork to fill out, directives and living wills... Like me, I am sure she is taking extra note of the smell of her childrens hair... extra glances at the sky. And though I know in my heart and soul that she will be ok, I am amazed at the fact that she is doing this by choice (Yup, no money or pressure here folks) just to give me the opportunity live!! Just hold out a few more months Larry ol' buddy of mine.... Sally is coming to take over for ya reaaaaaaaaal soon...Like, July 15th (possibly) soon!!

Tuesdays appt... Check!

One appointment down... three more to go this month. This one was quick and painless. (And just to brag a little... Officially 116 lbs. Eat your heart out) I got my Ear, nose, and throat doctor referral to get my nosey done (can't waaaaaaait to smell that one) and also an appointment with the cardiologist, because they are going to do a 24 hour echo (Oh ya... I'm keeping up with all the geriatrics on medical procedures)  Jason did go with me this morning unexpectedly, which was a nice treat. Even he commented on the "laid back" feel of my doctors office. They breezed through questions and the nurse tried to shorten my heart problem to GERD... I said "No, isn't that something pregnant women get?" she looked at me like a nut and said "No", and I said... "Well, whatever it is... It ain't the shortened version of Tricuspid Valve Regurgitation, I tell you what."  and I was right (well kind of. I googled it when I got home because they didn't have wireless connection there -- it's heartburn). Jason said, "Ya, it's a long freaking word, but she's gonna have to do some work and type it all out" lol. I almost left that office with a new disorder... hehehe. So that is that, not much exciting, just trying to stay afloat right now. Waiting for my Vegas trip really... little something other then the mundane.