Pray for me guys.... I can't seem to get more then an hour or two of sleep at a time without having to pee or shift for Larry's comfort, I'm down to 108.2 today, my nose is packed with (YAEH at least it's not bleeding!!) old blood clots and silver nitrate. I've got the in-laws coming in today, and a 1K walk to do tomorrow... (there will be no wheeling around for me either) Larry is doing this all the way baby!! GIMPING IT OR NOT!! Viva life.... hehehe. (if you could only see me now wrapped in my woobie, fuzzy slippers, and sprawled out in my recliner... whoo hoo, that's me, true motivator) I have got to get up.
Oh ya, and I have driven two days in a row (only to doctors appointments) but it was a little nerve racking still; although, I feel a lot better with my glasses on!! (Who would have thunk it!) I still get frazzled and can not have any talking or music on... but I made it there and back safely. Probably not worth doing to often though... I went out to the garage this morning to turn my water oasis on (that thing has brought SERENITY NOW... *Seinfeld quote*) anywho, I was startled by a shadow of a hand under my tire when I flipped on the light, but the first thing I thought... the first thing was "OH LORD, What did I do yesterday" hehehe. My second thought... did not occur to me until well after... which was, "Hmmm, could be someone hiding under there" but it was to late, I had already reached down and grabbed the whole hand. It was my gardening glove. hehehe... but still, I thought... if I had to question whether or not I remember hitting something yesterday or not, it is probably not the best idea for me to be driving much. ;)
Friday, April 30, 2010
Not always as it seems
I walked into my first Ear, Nose & throat appointment and had no idea what to expect, but when they called me into the back and told me to have a seat here, I almost turned around and left. Does this not look like it is out of some demented doctor horror movie? I sat though, and when the doctor came in and had a look, she said, "Ok, here is what we are going to do. We are going to cauterize the nose and then you are going to spray saline up your nose 4 times a day after that for 2 weeks and keep Vaseline on it" Great, I thought, another appointment! But nope, she then says... "We're going to do this right now" and started cleaning blood out of my nose. There are 2 parts of your septum (or something) in each nostril and she had to cauterize all 4 parts on mine because she said that everywhere she touched with a Q-tip was bleeding. It may take 1 or 2 more times to completely stop these bleeds, but you may not... she said as she sprayed numbing solution and then the silver nitrate in one quick move. "I'm done"... after I wiped the tears from my eyes, I asked "ok, done with what... the numbing? hehehe. Nope, she was done, cauterization complete!! Though it felt kind of like I stuck my head in water and took a deep breath through my nose.... it wasn't that bad, and it sure will be nice to not have to worry about a spontaneous bleed at the wrong time. And... Maybe, since I won't be loosing blood constantly, I will have some energy and won't be so dizzy all of the time.... is that to much to ask for? I think not!!Back to team Larry for a second... look at our banner! How cute is that.... I am so excited and can't wait to see all my friends and family on Saturday for the walk! It means so much to us!
If you still want to walk with us...
Thursday, April 29, 2010
quick update
Yesterday's doctors appointment was a little less encouraging then I thought it was going to be. I expected to go in there and tell him of my symptoms that are now actually affecting my eating habits, and come home with it resolved. On most days, eating anything solid causes (like a 5 on my pain meter) a baseball bat to Larry and my gut feeling. I have mentioned this pain before, but now it is daily and can have me doubled over for a while. The fix I got was.... basically, start eating pureed food or juicing it. Things like Malt-o-meal, mashed tatoes, fish... so that it doesn't hurt so bad. It was kind of like a... "Doc, my neck hurts when I do this"... "Well don't do that" type of response to me, but I do know that there is nothing he can do about it... it's just frustrating (especially when you have a co-pay.)
He also asked me about my Hep C. Since I am a non-responder to the old treatment, the doctors at USC have decided not to retry the same Interferon treatment again, which as I said before... I know that the HCV will come back and distroy my new liver, but this still buys me time... maybe even another 20 years, but I will most likely have to go through this again at least 1 more time. I know this already, trust me, I do, but it still is never fun to hear. "29" my doctor said yesterday.... "so young".
Hopefully todays Ear Nose and Throat appt. will be a little more productive... Maybe they can cauterize right there in the office. I have been super weak and dizzy, so I know it is definitely time to go get this fixed. hehehe (such a procrastinator)
ON THE POSITIVE... I AM SO PROUD OF TEAM LARRY'S FUNDRAISING PAGE. WHOO HOO.!!
He also asked me about my Hep C. Since I am a non-responder to the old treatment, the doctors at USC have decided not to retry the same Interferon treatment again, which as I said before... I know that the HCV will come back and distroy my new liver, but this still buys me time... maybe even another 20 years, but I will most likely have to go through this again at least 1 more time. I know this already, trust me, I do, but it still is never fun to hear. "29" my doctor said yesterday.... "so young".
Hopefully todays Ear Nose and Throat appt. will be a little more productive... Maybe they can cauterize right there in the office. I have been super weak and dizzy, so I know it is definitely time to go get this fixed. hehehe (such a procrastinator)
ON THE POSITIVE... I AM SO PROUD OF TEAM LARRY'S FUNDRAISING PAGE. WHOO HOO.!!
Thursday, April 22, 2010
RECYCLE ME! RECYCLE HOPE!
Recycle Hope, Recycle life!!
Register to recycle your organs/tissue when you're done with them and get the facts on everything you need to know at:
www.donatelife.net
Live Life then Give Life. YOU can save up to 8 lives. Remember there are over 106,000 of us waiting in America alone. Don't take your organs to Heaven, God knows we need them here!! 18 die everyday waiting, but YOU can be their miracle. So do it... do it now. Be a HERO!!
And recycle your bottles and cans too... what good are our organs with no beauty left in the world to see. Happy Earth Day!
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