No, I won't be posting every day, I just thought you would want to know how my first night of treatments went. Though I have to admit it was not the worse night ever, it was not fun. I don't know how many times I told myself that I was going to tell the doctors in the morning that I don't want to continue them after all, but when my doctor really did make his rounds (peaking his head around the corner to see if it was safe for him to come in.) He was expecting to find me curled up in a ball and cursing him, but was relieved when I put my smile on and said it wasn't so bad.
I did throw up about 3 hours after my first injection. Chills started a few hours after that, and by the middle of the night when I got up to go to the bathroom I felt like I hadn't moved in weeks. Today there is more nausea, along with no appetite, and a pretty gnarly headache. I am still very achy, but it does seem better after I take a lap or two around my ward. I can't wait to get home and take a nice hot bath, oh, I wonder if I could get a jacuzzi paid for by my insurance. Hmmm - ya right, they won't even pay for a full month of anti-nausea medicine. Anyways, the treatments seem to be about the same as last time except I am almost 10 years older (and have had 6 surgeries)... I can feel the difference.
On another subject, something that blew my mind today, is my MELD score (which if you don't recall, is the scoring system UNOS uses to decide how sick your liver is. 40 is the worst, but you can be transplanted at 15) right now, my MELD is at a 14 again. Just 3 months post transplant, but unlike last time, this can get better if we can get the Hep C under control because there is no cirrhosis yet. I guess that is really why I put a smile on my face and say it's not so bad... Not to many other choices, at least nothing that I personally would choose right now.
1 comment:
Thats right Ricki! Just keep smiling. You are one of the strongest and most brave people I know. And you have made me smile a hundred times when I was feeling down. There is no other choice but to fight! Sending hugs and strength! Like you tell me...its all worth it!
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