Thursday, March 15, 2012

The curse of the Albertoni vacation....

Whaaaa'??? Three posts in one month, crazy. Anyways, I actually wrote that last post earlier in the month, so i got some rest in between, hehe, but these last few days I haven't been feeling as good. :( What worries me is that I have noticed a pattern over the years, and it all started right before a trip we took to Vegas over 10 years ago... (fade to black) teehee. Two weeks before our trip I got sick, went into the doctor and found out I had a rupturing appendix. I had to have emergency surgery... But that didn't stop me from going to Vegas and dancing on the bar of the Coyote Ugly, oh no... We had reservations already, after all. Since then my mom has joked many times that I always have some medical emergency or find out bad news and then go away on vacation (leaving the rest of the family traumatized in my wake) I think she thinks I do it on purpose, but actually the plans are always already made... I think God just knows that I need time to get away before I process the information. Even on this most recent trip to Big Bear, I had a clinic appointment the morning we left... So again, I'm on the phone telling my mom that there is fibrosis throughout my new liver on my way out of town. So now you can understand my worry when I start to feel sick this week and I am going on a trip next week... And I have bloodwork to be done this week. Dun dun duuuun. (River says that whenever I tell him anything he doesn't want to hear, so if I tell him he has to go to bed, he goes "dun dun duuuun"... Such drama in this house) but I digress. Well, on the bright side, at least I am still able to go on my vacations most of the time... I may have to bring along a wheelchair, or feeding tubes, or bile bags, and always lots of medicine... But I go! Hopefully those days are over though, the curse is broken, and I just have a little stomach bug this time. Especially since we are planning to go to Hawaii for our 10 year wedding anniversary (and my 2 liver-versaries) in July. Yikes. Dun dun duuuun. :)

Tuesday, March 13, 2012

Still swimming...

Why hello again! Sorry it has been a while, but not much has really been going on... Well ok, there is always a little something going on, but I haven't been in the hospital or anything. I did have a biopsy last month because my liver counts were still on the rise. There was no rejection or cirrhosis, but my liver was inflamed and there is fibrosis throughout. This hurts. I also found out that the achyness that I have been feeling is probably arthritis. Waaah... Did I mention that I also turned 31 last month (I don't think that my body got the message... 31 not 81) Man, I feel old! I've been trying to exercise more, we even went on a bike ride the other day, but when I got off I had to peel my fingers from the handlebars. Any ideas on how to get relief on this would be much appreciated. On to better news, I have met (and now surpassed) my minimum weight goal... Could actually stand to lose a few pounds now. Tehehehe. I'm not complaining! I am enjoying my appetite for as long as I have it. That's my excuse and I'm sticking to it! So medically physically I am doing ok. I am eating good, not sick, regaining energy, and steering clear of the hospital! The only thing is that we have no idea how long that will last... Months, years? I know that no one ever knows, but still. I kind of know, unless something else takes me first, but most likely I will one day get a stomach ache that will not go away, I will start to get tired, throwing up, and then comes the ascites, HE, and jaundice... Oh my! ...Just keep swimming! (I think I watch to many kid movies.)

Anyway, that is what I am trying to do... Keep moving forward, and enjoy every second we can. For my birthday last month we took a trip up to Big Bear and rented a cabin for the weekend. So fun! This month we are going up north to celebrate some family birthdays. Next month is a big birthday month in our house, and we have our annual Donate Life walk to top it off! Yup, we are still rolling right along. :)

P.S. I finally finished my letter to my Donor family. It was the hardest thing I have ever written, I just hope that somehow it gives them comfort, and that my stupid body doesn't destroy their precious gift.

Friday, March 9, 2012

Donate Life Walk

Whoo hoo!! It is that time of year again. The Donate Life walk is coming up Saturday, April 28th, and just like the last two years we will be there to honor all of the heroes who have given the gift of life, including my two heroes!! Please register bebefore April 13th. I promise you will enjoy yourself and be raising funds and awareness for a great cause that has saved my life... twice!

A non-competitive 5K/1K Run/Walk to educate and inspire the community about organ and tissue donation while benefiting Donate Life California Organ and Tissue Donor Registry.
All runners and walkers, dialysis patients, transplant recipients, organ donors, donors families, allied health professionals and students are invited to come out and participate! Donor families are invited to make their own patch for the OneLegacy Bridging Lives Quilt
Saturday April 28, 2012. The race celebrates the last days of National Donate Life Month.
7:00 a.m. - Registration
8:15 a.m. - Donor Ceremony
9:00 a.m - Run/Walk
10:00 a.m. - Family Health Festival
California State University, Fullerton campus, around Intramural Field.
800 State College Boulevard
Fullerton, CA.

Registration fees:
$25 per person Team Registration (10 or more Team Members required)
All REGISTERED participants receive a FREE T-Shirt!

**Sign up here to join team Albertoni**