Since my liver numbers are not dropping like they should be, my combination is pretty much changing every time I have my labs drawn, which is, right now, every Monday, Wednesday, and Friday. This last Friday when I went to check in for my labs, my registration said "labs and biopsy" (Double Gulp) but after getting my lab results back, my counts had not gone up (or down :() so that meant no biopsy again, at least for this week. Sally and I were very happy! I am still very concerned about my HCV, and why Sally is not improving much anymore, but I will try hard not to worry about it until I know more. I'll just continue to try my hardest to keep my new liver happy and healthy... and try to keep my constantly changing meds straight. Luckily, (and I hate to be mean, but...) my nurse coordinator was "let go" this week. I was having some real trouble with her, not only was she very difficult for me to understand (you should have heard us on the phone every time my meds changed... Kind of important information to get lost in translation), but she was also not very helpful, and well... sometimes plain rude. (Not to mention, she forgot about me at least twice while I was waiting for my results so that I could go home... the last time adding a total of 4 hours to my wait at USC.) I was sick to my stomach having to go in there Friday, and asking if I could change my coordinator. (Though I admit, I am VERY proud of myself for doing it) God knows I hate confrontation, but as soon as I (quietly) said it out loud, I received a smile and 4 great words "She's no longer here" Problem solved... and I had nothing to do with it, (I think) And just to say, she is the only one I've had problems with at USC. But I digress. Muwahahahaa. --Back to my meds... Soon, hopefully we will get them regular and later, start slowly removing some of them. They do have side effects, some causing skin cancer, kidney problems, ulcers/bowel problems, diabetes, high blood-pressure, balding, Roid-rage, moon face... just to name a few (and these are the common ones, I believe it is something like 75% of transplant patients get skin cancer) Needless to say, I'm keeping my sunscreen near the door, and am on the look out for a cute umbrella with UV protection.
- Prograf (Immunosuppressant) Side effects include insomnia, tremors, headache, high blod pressure, high blood sugar, hair loss.
- Cellcept (Immunosuppressant) Side effects include diarrhea, nausea, abdominal discomfort, and changes in blood cells count.
- Prednisone (Immunosuppressant) Side effects include stomach ulcers, huger, weight gain, swelling, moon-face, high blood sugar, acne, mood swings, bone weakening, and cataracts.
- Pepcid (Antacid) protects from all the above anti-rejection meds, especially the Prednisone.
- Bactrim (Anti-Bacterial) Side effects include nausea, diarrhea, and rash
- Nystatin (Anti-fungal) ...I call this my jungle fungal juice. Side effects include skin irritation, acne, skin streaking, unusual hair growth, and dryness.
- Valcyte (Anti-viral) Side effects include diarrhea, constipation, nausea, headaches, and dizziness.
- Magnesium-Oxide (Mineral) Side effect (just the normal one) is diarrhea.
- Prozac (Anti-depressant) ...I've got nothing but love for my prozac. tehehee
By the way, do you like my temporary tattoo? tehehe, as soon as I can, I'll have one much more permanent. (shhhhh, don't tell my docs - jk, I go to a very professional and STERILE artist.) And don't worry, I will tell my docs myself... they are only there to help.